I'm sure to get through it, as we all must. The key is to be as respectful as possible. K Chris My wife was diagnosed with sever chronic migraines 16 months ago that have left her in bed in a dark room 90% of the time. Poulin and his co-authors found that the strress of caregiving is eased when it is seen to make a difference and is appreciated by the spouse. Alissa, I am in the same boat. To have this unconditional grace and patience in this lifetime. Source: Rick Nauert PhD Dr.
Three back surgeries and neck fusion on his way to a second neck fusion. I am very thankful he is as good as he is but not nothing like the man I married and loved. It also gives him the gagging affect and shortens his own breathing, making him use more oxygen from the ventilator. It would have been nice if I could have spoke to his Oncologist first. Family caregiver quality of life: Differences between curative and palliative cancer treatment settings. Lori P Kim, I totally feel you.
On that note, I need to eat and get to bed so I can start another 12 hour day. Relaxing for me an something she really enjoyed. Mary Etta Wow what a woman you are. But bottom line too is still take care of yourself. He sleeps 18-20 hours every day and I have to do all of his caregiving and take him to treatment 3 times a week for 5 hours each time.
If you knew one please call me 2257211991. Not only does this disturb me, because his cancer spread to lining outside of lung. I tried to get my wife to go over paperwork and bills with me before her heart operation and she kept giving me excuses. I don't expect anyone to understand. I can identify you all of you.
Self care before caring for another. I still do believe she will recover. For those who have found themselves in the all too common position of being a caregiver to their spouse — the story has changed. He felt the bedspread, as if for the first time and noticed that the lace fringe around it had a snowflake pattern that he could make out with his fingertips. We are here for one another. It's a difficult thing to go through. Cause I can not handle unexpected stress especially from others.
I am no longer a wife, I am a full time caregiver. In this study, caregiver burden and depression were similar to those levels reported by caregivers of patients with non-advanced cancer ; ;. Like most that write on this blog, I am am nurse, chauffeur, maid and everything else. Sometimes one just needs to be heard, or hear it from someone else. Mary Etta Bev Your situation is so much like mine.
It's a day by day thing, and just trying to get one organ up and running at a time. I thought his family would be so supportive, but instead were only extremely disappointing and so thoughtless. It's still so up and down. This is not a life for sissies. Today he has a low grade fever 100. Caregivers Of Spouses With Dementia Enjoy Life Less Date: August 13, 2008 Source: Case Western Reserve University Summary: Spouses of husbands and wives with dementia pay an emotional toll as they care for their ailing spouse.
I'm tired of seeing that hospital as nice as it may be. Caregivers know what they need to do but rarely feel like they have the time or energy. I work and then I come home everyday she wants me home at a certain time of night and all weekend. Hopefully the trach will be more comfortable, and will transition him to breathing better. I don't have that privilege, so I'll have to make due.